Beyond the silence of the body: medical anthropology and the healing vocation in rare diseases
The onset of a rare illness significantly disrupts an individual’s daily life, transforming the body from a transparent entity into a source of concern. This leads to existential discomfort and a fractured identity, as the person’s lived experience diverges from social perception. Acknowledgment and dialogue in medical practice are essential for effective care. Continua a leggere Beyond the silence of the body: medical anthropology and the healing vocation in rare diseases